ACKNOWLEDGED BY THE YALE IRB 7/13/2022
About the study:
Your family has been invited to be part of a study of families in which an individual has trichotillomania or other body focused repetitive behavior (BFRB). Although it is well known that genetic factors play a role in causing BFRBs, the responsible genes have not yet been discovered. Recent dramatic advances in genetic techniques hold out the promise that we may soon be able to identify such risk-conferring genes. The purpose of this study is to identify the genetic factors that cause trichotillomania and other BFRBs using a family-based approach. This will greatly contribute to our understanding of these conditions and may help develop new therapies in the future. This study requires participation from an individual impacted by trichotillomania or other BFRB and both biological parents. The study can be done in-person or remotely. We are not able to offer you a report of your genetic results because our studies are performed as research. Our research lab does not offer any treatment.
What do we need from you to participate?
Genetic Samples: we will obtain a saliva sample for genetic analysis from the affected individual and both parents.
Questionnaire: we will ask you to complete a standardized questionnaire asking about BFRBs and related disorders as well as questions about your medical and psychiatric history.
If you have further questions or are interested in participating in our study, please contact us at firstname.lastname@example.org or call us at 203-745-0267.
Thank you for your interest in participating in this research study!
Study Title: Genetic and molecular studies of developmental neuropsychiatric disorders associated with cognitive and behavioral impairment
Header photo provided by the National Cancer Institute (unaffiliated)